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Message started by Midnightrider on 01/03/13 at 19:41:37

Title: Lupus , now Diabetes
Post by Midnightrider on 01/03/13 at 19:41:37

I've had Lupus for 4 years, now I've been diagnosed with diabetes. Life is really becoming a daily struggle. A week before Thanksgiving I had to be rushed to the ER, I couldnt breathe. I had blood clots in my lungs. I'll be on Cumadin for 6 to 9 months. I was living on steoids for the Lupus but I had to come off of them because they do not mix with the bloodthinner cumadin. I know why atheletes love the steroids now. I'm physically weak and exhausted and now I'm restricted to a diet of curds and whey. I'm 58 and my doc says I have the body of a 70 year old. Everyday I try to find something to be thankful for, I have thousands of dollars worth of toys I'm too weak to play with. My little Ninja is setting in the basement with stopped up carbs, cant imagine life without a motorcycle but I really need to fix it and sell it, just cant bring myself to do it. Those of you who are healthy treasure it, you are blessed. Sri I'm gonna try to be in Mooresville Sat eve and do a little racing. I need to get of the house. I hope you understand now why we havent already gotten together. The last 2 months have been hell. I'm not asking for pity, those of you who are healthy please dont ever take it for granted. There are days I have to hide from my grandson because I'm too weak to play with him. I hope none of you ever have to experience that.

Title: Re: Lupus , now Diabetes
Post by ZAR on 01/03/13 at 19:55:44

Midnight my prayers are with you. I'm the same age and I feel a lot older due to the types of work I've done over the years but I'm still out there plugging along. Hang in there!

Title: Re: Lupus , now Diabetes
Post by Starlifter on 01/03/13 at 21:29:51

Peace and healing my friend.

Title: Re: Lupus , now Diabetes
Post by diamond jim on 01/03/13 at 22:14:49

Midnightrider, I don't know you but your post compelled me to respond. My career in healthcare allowed me to work closely with patients with very significant struggles. My personal medical struggles furthered my knowledge and compassion for those suffering. Drawing upon all of this, I humbly offer you my prayers.

I've been through the periods of hiding from people. At least it felt that way to me. When friends saw me, it seemed to them that I wasn't fairing to badly. I would have to explain to them that if they see me its because I was having a fairly good day. When they don't see or hear from me there's a reason. They care about us but they don't get to see those bad days so their polite and optimistic assumptions are understandable.

Title: Re: Lupus , now Diabetes
Post by justin_o_guy2 on 01/03/13 at 23:26:12

Having gone from pup to old dawg in only a few years, I can empathize. I was able to run a sub 5 minute mile when I was 27. I was in a hospital for 6 weeks when I was 28 & have never been okay since. Pesticides,, & heavy metals & industrial chemicals made a mess of me. I was misdiagnosed as bipolar & treated as such, which delayed proper treatment & That crap did more damage.. The medical field is filled by well intentioned ill equipped arrogant idiots,. Treatment for chronic illness is quite often very wrong. American medicine SHINES in the "Quick, he has been in a horrible accident" scenario, but for people like me,, Nope.

Title: Re: Lupus , now Diabetes
Post by LANCER on 01/04/13 at 04:37:38

My heart goes out to you dude, and my prayer for your better health.
I understand fully the difficulties dealing with healthcare workers who have no idea how to deal with chronic problems. You are correct, they are educated and trained to do the "quick fix", but unfortunately that is geared to make a decision in just minutes and then give you drugs to treat the symptom and not the cause. My journey down this road began in 1979 and it was not until the mid 90's before I found a doctor who was a real "problem solver". His goal was to find the causes and then try to heal it. Healing was not possible (much of the problems resulted from Agent Orange exposure) but he did find ways for me to live a semi-normal life. As mentioned above, many people don't understand how severe chronic health problems can effect you. You may have some better days between all of the hard days, and you usually only see others when you feel a bit better. I have had comments before of "you seem pretty healthy to me", and they have no idea of the past days or even weeks when I was not functional because of the pain. It's one day at a time and being thankful for the better ones.

Title: Re: Lupus , now Diabetes
Post by WebsterMark on 01/04/13 at 06:02:15

Philippians 4:11-12

Not that I speak from want; for I have learned to be content in whatever circumstances I am. I know how to get along with humble means, and I also know how to live in prosperity; in any and every circumstance I have learned the secret of being filled and going hungry, both of having abundance and suffering need.

Title: Re: Lupus , now Diabetes
Post by MShipley on 01/04/13 at 06:56:48

God bless you and we will keep you in our prayers.

One of my favorite scriptures Webstermark. After loosing my wife of 37 years in August I have had to fall back on this one often. For the first time in 58 years I find myself living alone.

Title: Re: Lupus , now Diabetes
Post by Pine on 01/04/13 at 07:37:56

My thoughts and prayers are with you.

Getting older, I find more and more things... that I wasn't prepared for. Sure we all expect little frailties... but sheesh only a lucky seem to fit that. So far, I feel very blessed, and work hard to keep relationships with friends for whom what is considered normal is but a long lost dream.

Title: Re: Lupus , now Diabetes
Post by srinath on 01/04/13 at 08:02:57

54707D77707E716D6B707D7C6B190 wrote:

Oooo so sorry, I have not even seen this so far ...
Saturday - let me know, I'll be here.
PM comming.
Cool.
Srinath.

Title: Re: Lupus , now Diabetes
Post by Dave on 01/04/13 at 08:31:03

Midnightrider:

I am so sorry to hear of your pain. I just turned 57 and am watching my friends and family getting older.....and I am doing everything I can to delay the process in my own life. I do not take my good health for granted, and I have been blessed with good genes and a vegetarian wife that keeps me eating healthy stuff. I am slowly losing my hearing and my prostrate is growing - but other than that I am great! Two years ago my friend of 30 years was dying from Mesothelioma and I vowed to get healthier every day as he got sicker. I go to the gym every morning before work - and I am now in great shape. I have learned to enjoy the challenge of pushing my limits at the gym - and I never want to look back and see that I wasted my years of physical health. Every time I need motivation to keep going....I remember my friend Dennis and think that he would have loved to be able to do this, and it keeps me going.

Let us know if there is anything you need that we can help you do.

Dave

Title: Re: Lupus , now Diabetes
Post by LANCER on 01/04/13 at 15:18:34

011F24253C2029354C0 wrote:

I lost my first wife in 2010 after 35 years. It left me feeling in limbo which led to some things that were not good for me. Fortunately, my "believing children" confronted their daddy about his behavior and helped me get my life back on the right track. God blessed me gave me a new wife and I am blessed much more now than I deserve. I thank HIM every day for all HE has done for me.

Title: Re: Lupus , now Diabetes
Post by MShipley on 01/04/13 at 16:00:48

That is awesome Lancer. You know my family all lives in OK went on a 300 mile ride out there just a couple months ago. Maybe next time im out there we can ride.

Title: Re: Lupus , now Diabetes
Post by Midnightrider on 01/04/13 at 21:41:42

Thanks guys, you probably dont realise it but each and everyone of you help make my life better almost everyday. Whether I agree with you or not your opinions matter to me and make me think. This forum is mainstream America at its finest. This is my local cafe and your opinions matter to me whether I agree with them or not. Many thanks for all the well wishes. Best wishes to each and every one of you.

Title: Re: Lupus , now Diabetes
Post by Starlifter on 01/05/13 at 16:43:31

Yes Midnight, we are all here for you. Everyone is in your corner as you fight the misfortunes of ill-health. ;)

Title: Re: Lupus , now Diabetes
Post by arteacher on 01/05/13 at 17:18:59

6D49444E494748545249444552200 wrote:

It took congestive heart failure to get me involved with a health teem to help me with my heart problems and diabetes, which I have had for 12 years, and have not been able to manage properly. because of the diabetes, and an inept GP, my kidneys are functioning at 80%. I have no one to take care of me, and not enough will power to follow the diet properly, so my diabetes is starting to affect my health for the worst.
Take care of yourself, and best wishes.

Title: Re: Lupus , now Diabetes
Post by arteacher on 01/05/13 at 17:24:53

Take care of the diabetes. Keep on the diet. I was weak and now have some health problems because I didn't. Take care of yourself.

Title: Re: Lupus , now Diabetes
Post by LANCER on 01/06/13 at 05:00:59

6B754E4F564A435F260 wrote:

That is awesome Lancer. You know my family all lives in OK went on a 300 mile ride out there just a couple months ago. Maybe next time im out there we can ride.

Would love to.

Title: Re: Lupus , now Diabetes
Post by Midnightrider on 01/06/13 at 19:24:39

arteacher do the best you can. I've had a heart attack (had 3 stints put in), the lupus, blood clots in my lungs and now the diabetes. It would be impossible for me to follow all the docs instructions, I just do the best I can. Cant quit smoking so I'm smoking those electronic cigarettes. I follow my diet 90% of the time. Progress not perfection.I've had a terrible weekend but hopefully tomorrow will be better. Take care as best you can. God bless you, Mike

Title: Re: Lupus , now Diabetes
Post by justin_o_guy2 on 01/10/13 at 15:18:06

When my Dr was concerned that I headed towards diabetes, she told me to eat beans for breakfast, that they would help stabilize my sugar thru the day,
Steer well clear of the Diabetes foundation, unless theyve changed in the last 6 years.,

Title: Re: Lupus , now Diabetes
Post by rustysavage on 01/10/13 at 18:55:50

May I offer some advice enjoy the good days as much as you can to cover the bad days. I personally wish I had diabetes instead of my 3 girls nothing hurts me more than having to give them a needle twice a day each. By the age of 3 each of my girls were diagnosed. The oldest is 20 now and in the back of my mind is a constant worry of a low sugar and not able to wake them up. My wife has Irritable Bowel Syndrome. Her Rx cost $30,000 a year thank god its covered by blue cross, myself I am good candidate for heart disease. It could be worst (cancer) stay positive It will help you and your loved ones

Title: Re: Lupus , now Diabetes
Post by justin_o_guy2 on 01/11/13 at 07:13:03

The world is just gettin crazier & crazier..